This blog has now been around for about 13 months. It looks like there are lot of new visitors coming here on a regular basis, so I think it's time to give a refresher on how and why this started.
Back in early 2008, I had decided that if I was going to run the Chicago Marathon for a fifth time, I was going to run for charity. As June approached, I still had not selected a charity to support. Early in June, my friend and co-worker Ken Fanaro and his wife Michelle's baby boy Cruciano was diagnosed with SMA Type 1. SMA is spinal muscular atrophy and is a devastating motor neuron disease that affects about 1 in 6,000 babies. It's not uncommon for children that have SMA Type 1 to not make it to the age of two. It became obvious that I would do something to support Cru and the Fanaro's battle with SMA.
I then chose to fundraise for FSMA - Families of Spinal Muscular. FSMA is the largest private funder of SMA research. They raise funds to help find a cure for Spinal Muscular Atrophy. Shortly after that, I started this blog titled "Running for Cru" to detail my 2008 Chicago Marathon training.
The fundraising went better than I could have ever imagined. We eclipsed the $3,00o mark within the first 24 hours on July 1st. By July 4th, we had surpassed $16,500. By the time the fundraising was completed in October shortly after the marathon, I was able to help raise $33,550 for FSMA with the help and support of hundreds of people.
Cru's battle with SMA was courageous. He fought a great fight and had the love and support of hundreds of people. His life ended incredibly too short on September 7th, 2008, just two days short of being five months old. He was only with us a short amount of time, but he touched the lives and hearts of so many. You can see pictures of him in the right margin near the top of the page. He will forever be missed and will always be in our hearts.
4 days ago